I remember the day that I first picked up "Changing the World of Autism" By Dr. Bryan Jepson, and the way that it made me feel. I ate that book up, and I felt it was a gift from my kind Heavenly Father to help us help Eli. And those feelings of gratitude and conviction were what we needed, because we found that biochemical intervention is taxing on parents on many levels, and just let me say that we were not well off. We were still getting Daddy through college at the time we started the program.
Just afew short years later, our lives are so different. Meltdowns are an extremely rare thing, and our boy talks in a communicative way. And man, can he read. I am positive I could not read that well until late first grade, and he is still in kindergarten. We have been blessed with a teaching job for Eli's Daddy, and we are looking into buying our first little home. This purchase is a huge step for us, and so I have been reviewing our expenses, and where does our money go to. Our grocery budget is $150-$200 dollars a month more than we would otherwise spend if not doing special medical diets. I have a credit card that I put Eli's supplements on, and I hate seeing the balance occasionally go up some months rather than go down. However, when I review this part of our spending, I realize that we have always been blessed to be able to make it through, and there is no going back. He is so much more well and so much happier now.
All these thoughts really take me back to when I read "Mother Warriors" by Jenny McCarthy. It was on sale for $4 and we were curious, so we bought it. My husband said all it did for him was make him sad. It had some value for me as I saw the practical side of other parent's struggle to implement biochemical intervention, and their successes. The part of the book that really blew us away was the part that explained the average cost of raising a child with autism. Let's just say that the sum she offered as "average" was afew times our annual income.
So just let me say, you can do this on a modest income. We do.
Just as a side note, another cost of biochemical intervention is being weird. Yeah, basically to the medical community in general, I am a weird, misguided parent. I have already been lectured by a dentist about how 'it is better to err on the side of caution' when it comes to the decision of giving my son his artificial fluoride. And just recently I was given a "news flash" at a pregnancy check up about how 'in those recent news stories the research was fraud and vaccines really don't cause ADD and other things.' Well, I don't know about all of that, but seriously all I said was that I didn't want to give my child hep B at birth. Sheesh.
4 comments:
You are not "ranting" like you suggested on FB. You've got a lot on your mind and you are sharing. :)
Nevermind those dr's and nurses, do what's best for you.
Thank you Maria.
*I would like to add that to my current knowledge, fraud allegations against Andrew Wakefield currently remain unproven in the court of law.*
Yup, it can be done on a modest income! This was a great post too. Thanks for sharing!
AS for the doctors and nurses, just pretend they are in their underwear when you talk to them. It will keep you smiling which will keep your blood pressure low. :P
Thanks Chef Penny, I am still giggling... :)
Post a Comment