Thursday, April 22, 2010

Food Sensitivities part 2

Last summer I was ill. The ache in my stomach was constant, although sometimes it was just a "dull" ache, and sometimes more stabbing. Often I was very tired. I didn't seem to have the energy to do much of anything.

I went to a specialist that calls himself "The Gut Whisperer." After moments in his office he ordered a full endoscopy procedure. I think the gallon or so of nasty stuff I had to drink was the worst part. It was hard to keep down. After the whole thing was over, he told me that it looked like possible celiac disease, so he would send the biopsy he took to the lab and I would see him in his office later to see the results.

I went home and for the next week or so I tried to avoid gluten. I thought I felt myself starting to get better. Imagine my shock when I went in to see "The Gut Whisperer" again the next week, and he says that the results of the test were negative. I told him about my dietary experiment, and he said that "non celiac gluten intolerance" may be the cause. He did not seem to think that eating gluten free was a good treatment method. He sent me home with a recommendation for probiotics and some little pain pill prescription, and the advice to "eat whatever I wanted."

I was so confused. I did not want to put a band-aid on an inner wound that he would not seem to fully acknowledge. I went home angry and drowned myself in a peanut butter and jelly sandwich that caused me to spend hours in bed that afternoon. That is when I decided to ban gluten and "The Gut Whisperer."

I ate gluten free for months, and I was mostly doing great, but I started noticing those little crampy aches at times. I was starting to suspect dairy as the cause.

It was at that time that I heard some interesting stats from friends. (Of course I do not have sources for these, they were by word of mouth, but they made me think.)

-45% of people with celiac disease also have a dairy intolerance.

-People with celiac disease are 40% more likely to have a child with autism.

As mentioned in Food Sensitivities part 1, my son did an allergy screening, and I decided to do the same.

My results were practically identical to my son's!!!

The exceptions are that he has strawberries and celery on his, while I had cantaloupe show up on mine.

Now Eli and I eat mostly the same. (Gluten free, casein free, banana free, peanut free, and as much corn, soy, sugar, and additive/coloring free as possible.) I have to say that I am feeling the best I have ever felt, and I am thinking so much more clearly. When I say that I am thinking more clearly, I mean that my ability to control my focus is improved. I have had trouble with attention my whole life because of ADD.

ADD and autism appear to be related genetically in many families, and in this case I would venture to suggest that in my family the relationship has to do with food sensitivities.

I think that this little "discovery" of mine is NOT an isolated event. While many parents are aware of their child's food sensitivities, are they having themselves tested for the same food intolerance? It would be a good idea. On my new diet, I feel empowered with greater energy and focus to help my son recover, and I wish that for other parents, too. Oh yeah, and I also urge parents to take a lesson from my experience and find the right professional to do the testing, like one that actually believes in food sensitivities and offers alternative allergy therapy for long term treatment.


celiacgirlie said...

I have had 2-3 biopsy done and they came up negative. However things got better on GF diet. My GI doc said that wasn't it and I could eat whatever, but I didn't think that was right. Although things are still bad for me at least I have gained weight instead of losing.

Did a blood test show celiac? For me it did.

Linda said...

Doctors can be very frustrating at times. I'm so glad you figured out what you needed to do. It's good that you were tested for celiac before going gluten free. Sometimes it's nice to have a diagnosis, but your improvement on the gf diet clearly shows you are gluten intolerant.

Celeste Jean said...

I did not do the blood test for celiac. I guess after my experience with my son I decided not to bother.

This blog post was brought to my attention by my sister in law. It is about the rise in gluten intolerance, and I found it to be very informative.

Cinderella said...

That's interesting that you went to Karnam and didn't like it. I'll probably go to him at some point in the far future before I get pregnant. I'm glad you're feeling better, though. I have a physical on Monday that I can't wait for. I may have allergy testing done, too. I don't feel great, and it's frustrating.

Celeste Jean said...
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