Conventional Cotton

My journey with autism in my family has taught me to look at earth conservation in a new light. I believe that many diseases, including autism, are brought upon us in part by our environment, or rather, our lack of care for it.

I was playing with google one day and I came up with the stats that only 5% of all crops are cotton, yet 25% of all pesticides/fertilizers are used to produce commercial cotton. Also that the production of three conventional cotton t shirts require the use of one whole pound of pesticides and fertilizers. I am not bothering to cite sources on this one because I found these same stats on MULTIPLE sites.

In my little family we are doing some small things to try to combat this issue. First of all, we shop thrift stores first. Thrift stores have more variety and they are easier on our budget. More importantly, buying second hand prevents use of more harmful chemicals for the creation of a new outfit, and that fact alone gives us so much pride in our thrift store purchases! We do not have any sources of organic clothing in our area as far as our knowledge goes, which is really very sad. If anyone knows of one, or of a good online source, do tell.

Recycling pre loved fabrics is something that I do in my studio and I am very grateful for my family's support in this. I make clothing items out of old worn out fabrics. Recently I made myself a long sleeved t shirt out of afew of my husband's old t shirts that would have gone in the trash. I find using preexisting fabrics to create new fashions very exciting because, once again, reusing fabric prevents the use of harmful chemicals. Some of my creations I post in my etsy shop.

Speech Progress!

Autism causes caused developmental delay that often severely tampers with speech development. Our son not only has autism, (inherited from the family,) he also has additional issues with speech. (Also inherited from the family.) He has had many "Eli" words for many of his favorite things for a long time. For example, "Go-Go" was Gordon the train from Thomas and Friends for quite a while. I just had to write a little post to say that we have had some things going for us in the speech department lately.

Eli's doctor has put him on a pretty high dosage of vitamin E, which of course he monitors. He said that it helped with speech development. Also, at Eli's new autism preschool he receives significantly more speech therapy than he used to. (Next week the speech therapist is even meeting with me to teach me things we can to at home with him. Exciting!) The result of these changes has been just pure awesomeness. Yesterday after some coaching Eli learned how to say "Thomas" correctly. He has always loved Thomas the Tank Engine, but for the longest time he has called him "Boo-Ess," then he was "Mum-Ess." Now at age 4 and 1/2 he can finally call him Thomas! We could not be prouder. Now if I can just get him to stop saying "Bups" for "Grapes."

The Neighbor Boy

My son has a little friend in our duplex who is just his age. For being only 4, his little friend has been pretty understanding and patient with Eli. They run around together in the yard we share and ride their bikes up and down the driveway together. Sometimes his friend comes over and they watch TV or watercolor together.

Just recently though I have been noticing that his friend has been starting to take advantage of the fact that Eli has a hard time communicating. On acouple of occasions very recently Eli's friend has done little naughty things to him, like taking things from him, when I am not looking. Once I noticed a little smirk on his face when Eli couldn't tell me what was wrong.

Now of course I am not mad at the little neighbor boy. He is probably behaving age appropriately for whatever typical 4 year old phase he is going through. Most little boys probably would have started this type of behavior long before now. I should probably explain to his mother because I happen to know it is very important to her that her son learn how to interact and have patience with people who have special challenges. I know she will be able to gently explain to him why his behavior is not appropriate in a way that he can relate and understand.

I am finding myself upset about this today because it's alittle bit traumatizing to me. It makes me scared for my son and how people may treat him in the future. If you are familiar with the play, "Flowers for Algernon," you'll remember that Charlie, the man with special challenges in the play has coworkers who he says are his friends. All these men do all day is poke fun at Charlie and laugh at him. Although Eli is very bright and I hope for much recovery for him, I do not know what level he will be at socially when he is, say, a teen. Or when he enters the work force. It makes me afraid of people taking advantage of him because of his challenges.

Dear God, protect him. Even from his friends.

Eli's Toy

We call this Eli's "P" toy. I give it to him on days when he is having a hard time keeping his fingers out of his mouth. I ordered this for him some time ago so he could have a chewing outlet without reverting back to the binky. It is just a therapeutic orange "P" that he chews on... it keeps him from chewing on his fingers, the playstation cord, etc.





www.chewytubes.com

We often put this on a nylon cord as a very loose necklace for him when we go places with it. Last week I went to my mother's with Eli and his "P" necklace. My 16 year old brother, (who also has autism,) was very concerned. "What does that P stand for?" He was very interested to know. I told him that it didn't stand for anything, it was just Eli's toy to chew on. "OH!" He said with very obvious relief. "I am so glad that it does not stand for anything inappropriate." I love you Jared, you are hilarious!

Art About Autism

I am very proud to show off my latest piece. It is called, "An Autism Sibling's Childhood." It is about my childhood in Oregon. We had picnics at the coast, trips to the mountains, and of course, autism with all of the unique, beautiful, and sometimes complicated characteristics that go along with it.

The medium is a linocut print. I carve these in an artist linoleum and hand print and pull them. It gives them an irresistible rustic look. Every print I make from this block will be unique.





View listing by clicking here.

I Am a Kirkman Mom

My son is on a small collection of supplements which are monitored closely by his DAN! doctor and they really do make a difference for him. I have discovered that most of his supplements I can simply get from one place online, Kirkman Labs.

I thought I would share the site there in hopes it would be helpful for other parents. The great thing about them is that their supplements are made for people with food sensitivities. There is no gluten, casein, sugar, or other reaction triggers in their products. I have also found them to be very reliable.

One thing that I love about this company is that this year they were named one of the "Oregon Top 100 Green Businesses" which they have to meet high standards to qualify for. They also have a line of products called Kirkman Kleen and which are natural, safe cleaning products. Go Kirkman!

Kirkman Labs is on Rosewood Lane in Lake Oswego, Oregon, near to the place where my uncle and aunt lived when I was a child. We lived across the river and we visited them often, so I suppose that is another thing they've got going for them in my book. :)

Check it out here: kirkmanlabs.com

Parent Training

My son's autism preschoool has parent training nights and I think it is so wonderful because parent education makes all the difference. Tonight after coming home from one, however, I have to admit I am alittle frustrated. Some parents were discussing "the diet" and basically putting down biochemical intervention. It was obvious that they had not tried to educate themselves on it. I told them I have been doing biochemical intervention for a year, I told them about the monumental difference (his social smile, understanding discipline, etc.) I said there is a book they can read, (Changing the Course of Autism, by Dr. Bryan Jepson,) and that I am willing to talk to anyone about it. After that I tried to keep my mouth closed. It was hard because I feel like even if they choose not to do it, they should not discredit it. To me that is wrong. One parent approached me afterward, and she understood exactly how I felt! "Some people are so ignorant about food," she said. I can't explain how relieved I am that there is another parent like me in the group and I look forward to talking to her again on the subject.

One of the handouts we got tonight was a little story. I read it once in Jenny McCarthy's Mother Warriors book, and I have to tell you it never looses significance for me. I think the author got it head on.

WELCOME TO HOLLAND

by
Emily Perl Kingsley.

c1987 by Emily Perl Kingsley. All rights reserved

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.